Questions about mesothelioma? Call 1-800-726-1860

asbestos and mesothelioma

  • This field is for validation purposes and should be left unchanged.

Your message to us will be held in strict confidence. All requests for information by mesothelioma patients and their family members will be answered within 24 hours. Mesothelioma Treatment and Care Guides are sent to mesothelioma patients and families by overnight delivery.

Asbestos Exposure from Unexpected Sources

Exposure to asbestos during our lifetime can be a common occurrence. Depending on the house you grew up in, where your parents worked, what you did for a living, how your home was insulated, chances are you were exposed to asbestos. It is a known carcinogen, a naturally occurring mineral that has been used in products for centuries because of its fireproofing and insulating properties. Although the facts about asbestos exposure leading to illness have been known for decades, it continues to be used in products. Asbestos is not banned in the United States.

We know that asbestos is still used in certain industries. The most commonly known products are automotive brakes, pipes and flooring. We do not expect to find it in personal consumer goods, but in 2015 four types of crayons were found to contain asbestos. The crayons were manufactured in China and sold in the United States. We do not expect that asbestos would be in our children’s crayons.

This past week it has been reported that asbestos has been found in some makeup products sold by a popular store for young teenagers. Tremolite fibers, one of the forms of asbestos, were reportedly found in the talc of one of the lines of cosmetics. Currently in the United States the Food and Drug Administration does not permit the use of asbestos in cosmetics. However, the FDA does not require manufacturers to test their products, nor even recommend that the most effective means be used to identify asbestos. The store involved is conducting its own investigation. They have stopped the sale of the product while the investigation is ongoing. We do not expect to find asbestos in our children’s makeup.

Protecting our children from harm is a primary responsibility of parents. Sometimes the harm is hidden. The time between exposure and developing the disease is decades. Less than 1% of people exposed to asbestos develop mesothelioma. Of the less than 1% that do develop mesothelioma at least 80% is caused by identifiable exposures to asbestos exposure decades earlier. The remaining mesothelioma cases may very well be caused by other asbestos exposures that are now being uncovered, such as asbestos in cosmetic products.

Asbestos related diseases are preventable. Awareness about what asbestos is, education regarding where it is used and in what products is available. The Asbestos Disease Awareness Organization is a web site to check out to become educated and aware of the dangers of asbestos (www.asbestosdiseaseawareness.org).

Asbestos is not banned in the United States it is important that we all become aware of the potential danger of this carcinogen.

– Lisa

Libby Montana: How an Idyllic Town Became the Home of An Asbestos Disease Epidemic

Libby Montana Asbestos MesotheliomaThere is a beautiful place in Montana in the northwestern area named Libby. The description from the City of Libby web site speaks for itself. ” Libby Montana, is a uniquely located town in northwestern Montana where the Cabinet Mountains meet the Kootenai River. Surrounded by the public lands of the Kootenai National Forest, Libby offers pristine lakes, rivers and mountain trails unencumbered by the crowds of people you would encounter anywhere in the lower 48 states. Down hill skiing options are some of the most varied in all the Northern Rockies with four to choose from in a less than 2- hour drive. Nordic skiers can explore the solitude of the back country or enjoy groomed trails with evening skiing. Rivers and streams are filled with native fish that reproduce freely and don’t need to be restocked. Local guides float the Kootenai with fly fisherman from all over the world. Hiking trails include 1400 miles of moderate to strenuous hikes that follow huckleberry laden hills to breathtaking views of the Cabinet peaks.”   The description goes on to describe an idyllic place for all seasons.

The Environmental Protection Agency –EPA- is charged with protecting the health of people as well as the environment, air, water and land. Together with local agencies they assess, evaluate an area then act. Sites can be declared Super Fund sites that designate them for cleanup. Since the beginning of this process there has been one site that conditions have deemed it be designated as a public health emergency. On June 17th 2009, the director of the EPA determined that conditions at the Libby Asbestos site constitute a public health emergency the first and only Public Health emergency from an environmental disaster.

The idyllic place in northwestern Montana was poisoning the residents. For decades in the mountains and hills of Libby the residents made a living working at the mining operations of asbestos initially for the Zonolite Company. In 1963 W.R. Grace purchased the mining operation and greatly increased production. Production did not stop until 1990. While the mine was operating it is estimated that it produced about 80% of the world’s supply of vermiculite. Vermiculate was used in building insulation and as a soil fertilizer. The vermiculite from the Libby mine was contaminated with a toxic form of naturally occurring asbestos called tremolite-actinolite series asbestos.

The human suffering that the people of Libby have endured continues today. In 2000 the population of Libby was 4,500 people, at that time, nearly one-third of the population, some as young as 10 years old had developed asbestos related diseases from exposure to tremolites- contaminated vermiculites. Doctor Brad Black came to Libby in 1977 as a Pediatrician.   He has been a supporter of his neighbors and an advocate for continued specialized health care for the citizens of Libby. In 2000 he and fellow concerned citizens, formed the Center for Asbestos Related Disease Foundation- CARD. The work of the foundation includes research and treatment of the citizens of Libby. CARD and Dr. Black are an integral part of the Libby Epidemiology Research Program that is being conducted in conjunction with the Icahn School of Medicine at Mount Sinai New York.

There are 3 books that detail the tragedy of Libby: Fatal Deception The Terrifying True Story of How Asbestos is Killing America- Michael Bowker, Wasting Libby, The True Story of How the WR Grace Corporation Left a Montana Town to Die, Andrea Peacock: An Air That Kills- How the Asbestos Poisoning of Libby Montana, Uncovered a National Scandal, Andrew Schneider.

The period between exposure to asbestos and symptoms of mesothelioma can be anywhere from 15 to 50 years. The amount of exposure and when the exposure happened are all being studied.

Libby Montana continues to be de-contaminated by the EPA. Residents continue to be diagnosed with asbestos related diseases at the CARD clinic. Research continues, patients are being followed and cared for, and asbestos continues to be legal in the United States.

– Ellie

Mesothelioma & Asbestos Research: Libby Montana

Libby Epidemiology Research Program

Libby Montana Asbestos MesotheliomaThe Libby Epidemiology Research Program is sponsored by the U.S. Center for Disease Control. The Principal Investigator is Raja Flores M.D., who took over after the death of Dr. Stephen Levine. The study was funded by the Agency for Toxic Substances and Disease Registry (ATSDR) it was a five-million-dollar research grant that was awarded to the Icahan School of Medicine at Mount Sinai, New York. The purpose of this award was to understand the long term health effects of exposure to amphibole asbestos in Libby Montana and the surrounding communities. Working collaboratively with a local Libby health group- Center for Asbestos Related Diseases- CARD- founded and run by Dr. Brad Black, together with researchers from Idaho State University and Montana State University at Missoula, to help understand the uniqueness of Libby Amphibole disease

The study was a comprehensive five year look at three major areas of health of the residents of Libby. Those residents suffered environmental exposure not as a direct result of participation in W.R. Grace and Company mining operation, just by living and playing in their community. The three parts of the study were designed to see if the effect on the immune system, lung development and lung scarring, and whether these health complications overlap with exposure.

The program was broken down into three separate studies. The Pre-Adult Latency study examined the health consequences of exposure on young people whose lungs were still developing and maturing. This study will examine those exposed 15 years after the initial exposure.

The Cat Scan –CT – Progression Study- this study follows the progression of lung scarring as seen on CT scans. In addition to Dr. Flores from Mount Sinai, the study has two other experts in radiology from Mount Sinai. Dr. Claudia Henschke and Dr. David Yenkelevitz. Through the expertise of these specialists and Mount Sinai’s experience with other people exposed to a different form of asbestos, using thorough progressive CT scans over time, they are trying to determine if scarring on the lungs from Libby Amphibole pleurall scarring progresses more rapidly. This can have important implications for all asbestos related diseases- if it is proven that disease progression is different with different types of asbestos, treatments and treatment plans can be devised to intervene earlier than is currently done.

The third part of this study focuses on what effect the possible exposure has on developing auto immune diseases. In August of 2016 the results of this part of the trial were announced. The results indicated as much as a 10 x increase in the risk of lupus, scleroderma, and rheumatoid arthritis in people that had been exposed to amphibole asbestos.

All three parts are closed to additional patients and the data is being compiled with the results to be used to help further specialized treatments for asbestos related diseases. The report is expected by year end on the lung development in children portion of the study. The pleural lining study is on hold at this point.

Working in collaboration with local agencies, new data findings with regards to exposure to certain asbestos fibers in Libby have furthered the understanding of exposure to asbestos and its long term effects.

Taking Inspiration from a Peritoneal Mesothelioma Survivor

InspirationWhen diagnosed with mesothelioma or any cancer some of the questions that run through your mind are: Will I ever be able to work again? Will my life ever return to being my own? Is this the end of life as I know it? What does my future look like? A diagnosis of mesothelioma with its survival statistics can be overwhelming for many people.

Sometimes in life you meet people that make a life-long impression on you. Whether it be at school, work, or socially you just don’t forget them. Many years ago at my first nursing job as a R.N., Julie was one of those memorable people. Julie was outgoing, fun, friendly, kind, a role model, a co-worker that you looked forward to working with. We were both R. N’s on a busy surgical floor. The patients all loved her enthusiasm and her wit. After a few years Julie left to get married and move to another state. The grape vine over the years reported that she had two sons.

A few years ago one summer day, I received a call from a friendly nurse inquiring about a nursing position. After talking for about 20 minutes, I disclosed that in addition to the service she was inquiring about we also did another service that we were passionate about: we followed patients that have mesothelioma, a rare disease. The phone went quiet as the nurse on the other end of the phone revealed she had peritoneal mesothelioma. We talked about what the chances are for her to be calling about another position and stumbling on our other services with mesothelioma patients. Continuing our call, she talked about her work experiences. I made the connection when she said her name. “You are tall, blonde, pretty, but what I remember most is you are very funny.” She laughed and said she was still funny. It was Julie!   She had been diagnosed with peritoneal mesothelioma 5 years previously. She had surgery and now was living with mesothelioma. She had returned to work within 4 months of surgery because she wanted to. She now admits this was not such a good idea physically but mentally yes it was a great idea. She had control, she was living her life on her terms. Peritoneal mesothelioma would not define her. She has advocated for herself and for others and is active in the mesothelioma community. As for advice for patients who are diagnosed, “have a positive attitude, listen to your heart, listen to your gut, advocate for yourself, have fun and go out and dance!”

If you are interested in connecting with Julie who is and continues to be an inspiration, reach out to us. Chances are that she will become one of those people that you don’t forget many years later!


About Julie Russell R.N.

julie-russellJulie Russell is an experienced Registered Nurse who is also a mesothelioma cancer survivor. Julie’s clinical expertise in nursing is in the area of the Cardiac Intervention. She has also been an instructor of Advanced Cardiac Life Support (ACLS) and Basic Life Support (BLS) for many years. Her varied nursing background includes roles as a nursing supervisor, educator and staff nurse.

Diagnosed with peritoneal mesothelioma in 2008, Julie has undergone surgery, chemotherapy, and become an advocate for herself and others. A mesothelioma diagnosis effects the whole family. Her two sons became active in the mesothelioma community as well.   She is a passionate advocate for all patients, but peritoneal mesothelioma is a personal cause of hers.  She will be a guest blogger for us. Julie will be sharing her personal experiences with peritoneal mesothelioma as she continues to live and work a full life. Since diagnosis, Julie has also become a grandmother. We invite you to follow Julie’s journey and feel free to contact her for any questions or support.

Think Positive: Advice from an 8 Year Mesothelioma Survivor

Think positive! Yes, those 2 little simple words. Simple words they may be but a difficult thing to do when your pathology report just came back “peritoneal mesothelioma”.

Well let me introduce myself, I am a 64-year-old nurse who was diagnosed with peritoneal mesothelioma in 2008. I had absolutely no clue what this meant, what organ was involved and what my prognosis would be. I should know something about this disease right? I’m a Registered Nurse for 40 years. Wrong. I knew nothing and after contacting many doctors at my hospital I still was in the dark. No cases ever treated or diagnosed at this hospital. “Be positive” I kept hearing from everyone. How do you be positive when you can’t even find information about a disease. Ok I’m trying to be positive. Yes, I am aware of all the positive outcomes if you remain positive. But it’s really hard!!!!

After doing much research I was able to find an oncologist in New York who was very knowledgeable about the disease. He referred me to a surgeon in New York who performed abdominal resection with heated chemotherapy. Actually I didn’t think the surgery was that difficult. I was out of the hospital in 6 days. Chemo via those abdominal ports did knock me down a few times but maintaining a positive attitude does really help. I know it is difficult to be positive when the chips are down but being negative definitely doesn’t help! So here I am 8 years later working in my same cardiac unit, rollerblading weekly, and teach BLS and ACLS classes. Did I get here without any set backs?? I would love to say no it was a walk in the park. BUT now I can hopefully help others by telling how I coped with the ups and downs of my diagnosis. Hopefully you will follow my journey with me.


About Julie Russell R.N.

julie-russellJulie Russell is an experienced Registered Nurse who is also a mesothelioma cancer survivor. Julie’s clinical expertise in nursing is in the area of the Cardiac Intervention. She has also been an instructor of Advanced Cardiac Life Support (ACLS) and Basic Life Support (BLS) for many years. Her varied nursing background includes roles as a nursing supervisor, educator and staff nurse.

Diagnosed with peritoneal mesothelioma in 2008, Julie has undergone surgery, chemotherapy, and become an advocate for herself and others. A mesothelioma diagnosis effects the whole family. Her two sons became active in the mesothelioma community as well. She is a passionate advocate for all patients, but peritoneal mesothelioma is a personal cause of hers. She will be a guest blogger for us. Julie will be sharing her personal experiences with peritoneal mesothelioma as she continues to live and work a full life. Since diagnosis, Julie has also become a grandmother. We invite you to follow Julie’s journey and feel free to contact her for any questions or support.

Reflections on National Asbestos Awareness Week

As National Asbestos Awareness Week comes to a close we are left with a few points to reflect on.  Groups shared their knowledge, and patients and survivors shared their hopes and dreams, as experts weighed in on the possibilities in the future, and to remind us that asbestos containing products are still in use today.  Although mesothelioma is considered a rare disease, it is deadly. The world needs to be reminded that there is no ban on asbestos in the United States.  The U.S. Surgeon General, Dr. Vivek H. Murthy, issued a statement reminding the nation of the dangers of asbestos. The use of this naturally occurring mineral was so widespread that it was used in the construction of many homes.  According to the World Health Organization there are 125 million people that have been exposed to asbestos. Dr. Vivek H. Murthy, the Surgeon General, strongly urged that if an individual has concerns about being exposed to asbestos that they reach out to a health care professional. The U.S. Center for Disease Control and Prevention estimates that at least 10,000 people die each year from asbestos-related diseases.

A conference was held in the Washington D.C. area by the Asbestos Disease Awareness Organization (“ADAO”).  There were many speakers and many powerful messages. A couple of important points were: ”Everyone has a voice“ and “We are one”.  A survivor of pleural mesothelioma, Heather Von St. James, spoke about sharing your story and that everyone has one. Although you may think that no one wants to hear your story, you might be surprised about the impact you can make on others dealing with mesothelioma. Sometimes it may just help you to speak and say out loud what has happened to you and your family.  Ms. St. James encouraged all to call their representatives and spread the word about banning asbestos. Doing this simple thing could possibly make a difference and raise the level of awareness about this important issue to our elected officials.

The other aspect of the conference that caught my attention was their slogan: “We are one”. This slogan captures the necessity of all working together towards a cure.  Professionals, healthcare workers, patients and caregivers all share the common goal of improving the quality of life for patients and families as they fight this disease.

Dr. Raphael Bueno, the Director of the International Mesothelioma Program at the Brigham and Women’s Hospital, Boston MA, spoke about mesothelioma during a conference call. He suggested that we need to collaborate with our researchers, doctors and patients to fight this disease. He believes there are drugs out there that will be proven successful in combating this disease. The more information we share the more powerful we can become against mesothelioma.

As we mark the end of the National Asbestos Awareness Week 2016, we encourage everyone to remain active to raise our voices collectively to ban asbestos, and to support the victims of asbestos diseases across the country and the world.

– Ellie Ericson

 

  • This field is for validation purposes and should be left unchanged.

Your message to us will be held in strict confidence. All requests for information by mesothelioma patients and their family members will be answered within 24 hours. Mesothelioma Treatment and Care Guides are sent to mesothelioma patients and families by overnight delivery.

Recent Articles

Have a question? We can answer it!

Mesothelioma Questions

1-800-726-1860